Tuesday, May 3, 2011

Pump Envy??

Saturday night I was ready for Pump Class. At the Gala, I volunteered to watch over the junior ambassadors. We were sequestered to Studio B until it was time for them to do their "thang". And sitting at a table full of medtronic pumpers while they were all talking about their square and dual boluses and estimating carb counts for the pizza that we were served, I was ready to take the plunge! Everyone had received their pumps within 3-6 months of diagnosis. (We are 8.5 months into life with D) I could see all of the benefits of having a pump. Better control,more flexibilty in eating/snacking and being able to dose for smaller amounts, just to name a few. I was just sure when we went to our appointment last week with Aiden, with his little bruised arms and thighs, with him stating that he wanted a pump "hang" for his arm and asking if we could pick some up at the Dr.'s office that Dr. Maass would just say "sure, here ya' go." But instead, he said "I don't think we're ready, lets talk about it after summer." I was so bummed. Why weren't we ready? Are we not techy enough? Can he see my lack of organization and think that I won't be able to handle it? Are Aiden's numbers not good enough? Are we still honeymooning?

But just now after reading Hallie's post about The Scariest Night Ever I am once again scared poopless about them. There are just so many things that can go wrong and maybe there is a reason that our Endo is just so against it (for us, clearly he is not against it for everyone because all of those kids mentioned above are his patients too) for the time being. Maybe we will really just know when the right time will be. Now I just have Numbing Cream Envy. I have got to get me some of that!! ; )

I guess I just had to blog it out... I just read Hallie's post after checking Aiden's BG at 1am and I am just feeling sick. So sick for Sweet Pea and all that she had to go through and her sweet parents and what they had to see. We know how scary seizures can be and to just see your child so out of it and glassed over. It is just terrifying. We are so thankful that angels were with Sweets and her family, that her parents are ROCKSTARS, and that Sweet Pea is just fine now!! Thank you, Jesus!! ; )

And that is all. Sleep Tight!!

8 comments:

  1. I know, Leigh. We are researching pumps right now and then I go and read Hallie's post and feel my shoulders slump and my eyes tear up. NOTHING will keep our T1D kiddos safe from the ravages of this sucky disease. Suckity, suck-suck.

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  2. (((HUGS))) You and your Endo will know when/if the time is right. "D" is scary pumping or not. Sadly, INSULIN IS NOT A CURE! xoxo

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  3. I wasn't ready for at least 18 months.

    You can have crappy lows on shots.
    You can have crappy lows on the pump.

    If you keep up with Hallie on FB, you'll see that Sweet's lows have been persistent beyond that horrible night. New pump. New cartridges...she's still had extreme highs and crappy lows. No one knows why. Because D sucks, sometimes, I guess.

    It's the nature of this beast.

    Don't let fear make decisions for you.

    If shots are best for you, so be it. But fear doesn't get to rule your roost, my friend.

    Keep up the great work!

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  4. I totally agree with Wendy. Don't let fear stop you from doing what you want to do. If shots are working that is wonderful but if you feel that you are ready to pump I think you should go for it! I think you guys would be great pumpers! :)

    Maybe you could ask your endo what his thoughts are and why he suggested no pump?!

    You will know when the time is right. It is different for everyone.

    For me it just happened to be 10 minutes after dx. :)

    Love you, Leigh! Let me know if I can help in any way.

    Seriously, lows happen, highs happen. Diabetes can just suck it!~

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  5. Oh Leigh... Don't let this scare you! Was I afraid to get a new pump and hook her back up? Yes. HELL YES! But.... I think it's what is best for her. I think we can control her better. I think it helps her be a more "normal" kid. SHE wanted the pump and did not want to go back to shots any longer than we did.

    Things happen. Mistakes happen. Pumps fail. Meters read wrong. People make errors. Nothing is perfect. Nothing is guaranteed.

    That sucks. But it's true.

    It can happen whether you're on shots or the pump. It can happen no matter how often you check.

    So.... You've just got to do what you think is right for you and your kid. Don't let fear keep you from something that you think is beneficial. Ok???

    And I'm always here to talk....!

    And Wendy's right btw- we are seeing some weird stuff going on... I'm wondering if her pancreas isn't spitting out some insulin when it feels like it. Lazy bum.

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  6. It is definitely scary to jump to a pump...(heh, heh...that rhymed!) We got to a point where Adam was fighting his shots so much and with how much he grazes throughout the day, it was becoming a big battle. While I now worry about a mechanical device keeping Adam safe, the day-to-day rigors of diabetes are a BIT easier with the pump. ((hugs))

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  7. Hi...found you from your comment on my blog. :)
    I love finding new blogs...better chances that there will be a post somewhere when I want to read one!!
    Our first NP had a rule about pumps...wouldn't even consider it for a year. One of the many reasons we don't see her anymore!
    Our new NP was all for a pump and helped up make our decision to go with the OmniPod for Bean. That was around 4 months post dx.
    We have a friend who has been living with D for 5-6 years and she still does MDI. It just works for her. She's thought about a pump, but it's never been the right time for her. Now since she's seen Bean's pod, she's thinking about it again, though! ;)
    I totally agree that you should talk with your endo so you can understand where he's coming from wanting you to wait.
    And I totally agree that fear is never a good reason to decide for or against something!

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  8. I don't know what his deal is!! I'm so sorry-I know how you feel. It was hard on shots. There is fear with and without a pump, so it doesn't make it all better. I do WANT one for you though. You can always go ahead and petition your insurance for one, and set up pump training outside of him. Tracy Gartska is the rep in LR, and I sent her a message to see if Kimberlie Fig is still the rep in NWA. I'll help you : )

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