Sunday, October 31, 2010

Happy Halloween!

First of all... WOW! Thank you Amanada for introducing me and thank you all so much for visiting our blog! It was so exciting to see comments. :) I am so glad to be part of the DOC ( espcecially now that I know what it means! Ha!!) Thank you all so much! I really look forward to "getting to know" you all!!

Friday we had Emma's Fall Party in her classroom. It was my first official duty as Homeroom Mother! I was pretty excited!! So here's a look at how it looked before the chaos. :)
 After the party in the classroom, the whole school had a Mega Party for a fundraiser they wrapped up recently. Here's Emma and Nicholas (our neighbor's grandson - he told our neighbor that Emma is his girlfriend and when he was 13 he was going to kiss her. Oh goodness!!)
 They got to go into the inflatable room since they sold 10 items! WooHoo! Thank you family!!

 Right after school,  we had our school carnival. Nana helped out in the Chicka Chicka Boom Boom game. Sorry, Nana! I always get you with your eyes closed!!

 Then, as if that wasn't enough excitement for one day, we met up with Ella and Rylan and their family for the Razorback Homecoming Parade.

 They had the best time! Nana, this picture is for you - you can see Aiden marching. So cute!!
 This is what I would call Holy Crap a Moly. Aiden actually turned down the first couple of guys who tried to give him candy. But how can you turn this down? Uh... ya can't!
 He even got a Hog nose!
 So Emma ended up with 60 pieces of candy and Aiden had 70. Matt thought that was worth $10 each. Matt and I are sooooo not on the same page about the candy issue. He is NOT a candy person anyway. He is more a steak and potatoes kind of guy. I was practically born with a spatula in one hand and an a bag of sugar in the other. I am like a 4th generation sweet tooth and Aiden was proudly following in my footsteps. Except he was born with a Reeses Peanut Butter Cup in each hand! Ha! He has been doing so great without all of that, we are just terrified to reintorduce it and figure out how to make it OK as part of a healthy diet. And also make sure he learns that it is ok in moderation and that you have to cover it. Matt is really scared that he will just think that if we let him have a fun size Hershey bar on Halloween that he will think it is ok to have one anytime and if anyone gives it to him.  So that is our major delimma for the season.
 Saturday, we got to go back to the Ozark Corn Maze with the JDRF for a Healthy Halloween Party. We got to meet some more families and that is always so helpful and comforting!
 Darn corn maze. It took us FOR-EV-ER!
 They had a little petting zoo.
 And we took a little hayride to the pumkin patch.
And then it was off to cheer on the Hogs!! Woo Pig Sooie!!

Thursday, October 28, 2010

The Naked Pancreas Project

Reyna over at Beta Buddies started this naked meme... and I "borrowed" the format from Hallie. And if she thinks she is "vanilla", just check out our boringness. Although, Aiden is definitely the king of "nekedness" Ha!!

1. What kind on insulin management mode do you use?

Aiden is on MDI, but it is actually on One Daily Injection. One shot of 2 units of Lantus in the morning and that's it right now. But we don't know if we are just still honeymooning or what. We are kind of just waiting for the floor to drop out from under us.

2. How often do you inject/change pump sites?
We don't yet.

3. What type (s) of insulin do you use?
Lantus and occasionally Humalog to correct a high.

4. What are your basal settings ?
We don't know anything about that yet.

5. What are your correction factors ?
We don't really follow our slliding scale because it always seems to make him crash, but we have done this and it works.

1:550 (it hasn't actually been 550, but we do .5:275 and I wasn't sure if that was a correct way to put it.)
6. What are your meal ratios ?

It is usually higher at dinner time, but not enough to correct.

7. What do you do for activity and/or PE?
He has been falling low at Open Gym, but it is right at lunch time and so we usually just give him some apple juice and go to Chick Fil A. :) But other than that, it has been kind of weird, if he plays before dinner time, it has been going higher. What in the world is up with that? We thought activity always caused it to go lower. :(  That has us thrown for a loop this week.

8. How do you manage Pizza, Macaroni and Cheese, or any other "difficult to manage" foods?

Oh, how I wish he would eat more food. He is so picky, he will hardly even eat those things. But with our experience with our strict Endo in the hospital, we pretty much avoid them. And I haven't found any foods that just randomly make his bg really high yet. But we are watching. ;)

9. How do you prefer to manage your logs/data?

This is kind of funny. In the hospital, our pediatrician got us set up on a little chart that helped us record the numbers and at the time, he was on NPH and Humalog and it showed us how those doses affected his bg. We had a cute little graph at the top. So we transferred it to a big file folder, which was the biggest piece of paper I could find. When we took that into our new Endo's office, he just laughed and said that was the most interesting use for a manilla folder he had ever seen. Ha!! So we switched to excel and it seems to work for us since we don't have lots of changes.

10. What's your A1c?

August 2010 (diagnosis) - 10.0

And that's all we've had. He should get one at our next Endo appointment. I am very anxious to see what it is. I anticipate 5.84 based on his average bg's for the last 2.5 months.

Wednesday, October 27, 2010

Diabetes MeMe

I copied this from Ms. Hallie over at The Princess and the Pump and I wasn't technically tagged, but I'm sure she won't care! ;)

What type of diabetes do you have:

Because we stick to the same diet and lifestyle as Aiden, it does feel like we have it too, but Aiden has Type 1.

When were you diagnosed?

Wednesday, August 18, 2010

What's your current blood sugar:

Aiden's was 104 this morning. I am good with that. :)

What kind of meter do you use:

One Touch Ultra Mini (blue). We like it. Emma even snagged a pink one at the ADA walk. :) Aiden liked the blue one because Oliver on Hannah Montana had the same one. :)

How many times per day do you check your blood sugar:

We have been checking between 6 and 8 lately. He has been kind of lower during the night and we aren't taking any chances.

What is a "HIGH" number for you:

I would say that Matt and I freak out slightly at anything over 200, but his high has been 357 and he was 489 at diagnosis. But we haven't been correcting unless it was over 275. He seems to bottom out if we give him humalog for anything less than that.

What do you consider "LOW":

His low number that we have seen is 57, but he tends to be in the low 60's frequently after Open Gym (his new FAVORITE activity). But at bed time and overnight, we will give him apple juice for anything less than about 115.

What is your favorite low blood sugar reaction treater:

4oz apple juice boxes. The one with Big Bird is the favorite, but we did find some little bottles with a Bob the Builder lid and those were pretty popular too.

Describe your dream endo:

Dr. Maass pretty much fits the bill. First of all, the Saturday after we got out of the hospital, the JDRF was having a family camp that we went to. He was there and just made an appointment with us on the spot. No receptionist or scheduler, he just said "How about Tuesday at 3:30? And plan to be here for a little while so we can get all your questions answered." Wow!! And he gave us his cell, and home phone numbers and his email (which he promptly repsonds to!!)In the Hospital, we had a different Dr. A Harvard grad, living with Type 1. He was really good too and we are forever grateful to him. He got us established on a very strict diet and I feel like that has really helped too. He was just very busy and hard to get into and we feel good about Aiden growing up with Dr. Maass and being able to relate to him more easily. Plus, he is super fun! :) I can't leave out our regular Pediatrician, Dr. Lovell. We just LOVE him and his nurse, Keri! He was the one who diagnosed him and he prayed with us before Aiden was admitted. He was also awesome to come by everyday and make sure to "dumb down" anything we had heard from our Endo so we could understand it and make sense of everything those first few crazy days. (Also, when Aiden was 7 weeks and was admitted (to the same hospital room!!) with RSV, he prayed with us then too. We love that guy!!)

Who's on your support team:
We have our little family: me, Matt, Emma, and Aiden.
Our parents: My mom keeps Aiden often, is a nurse and has just been awesome not having to worry about his daily care when he is with her during the days she keeps him. She also was persistent in taking in his urnine sample and making sure we followed up with Dr. Lovell the next day. I could not survive a week with out her and believe me... she was on vacation last week and I am pretty sure we would not have made it another second without her!!! Not only does she help a ton with all D-related stuff, she does tons of laundry, cleaning and ALL of the ironing! God Bless her!!

My Dad has Type 2 and has been very good support! And Bev, oh Bev!! My step-mom is a pediatric nurse and always steps in to help us during all of our ailments. We have called her at all hours with everything from rashes to constipation and she always comes through. This time was no different. When we found out, she hopped a plane (or 6) was here to stay with us in the hospital. It was a huge relief just having someone who has worked with kids with diabetes, and it just took a load off of our minds knowing she was there. She has also be a big help in coming up with a good meal plan for our family.
Matt's parents were completely new to all of this too and they are working really hard to get it all learned just like we are. Plus they were tons of help in the hospital making sure Emma was entertained and staying with Aiden when we had to leave (Emma's first day of Kindergarten and my cousin's funeral).

Terry and Christy have been a great help too. They came every day in the hospital! It was so nice to have that to look forward to! They were lots of entertainment for Emma. Aunt Brandy was too!!

Then, I'll add the Dr.'s and nurse listed above.

Fianlly, Brian Doss and our local JDRF. Brian came to visit us in the hospital and has been nothing but helpful! He always has good advice and lots of support for us!

What is a "cure" to you:

I am just copying this from Hallie: "but a REAL cure is a working pancreas. No more pumps or injected insulin. It's the body working the way the body should. With no side effects."

The most annoying thing people say to you about your diabetes is:

Aiden can't have sugar. We are kind of new to this one, so I don't have a lot of examples.

The most common misconception about diabetes:

That Aiden can't have sugar. And even though I said this at the beginning, that it is controllable. There is such a difference between controllable and manageable. I can try to manage it, but it is so crazy and just does what it wants whenever it wants. It is just NOT controllable.

If you could say one thing to your pancreas, what would it be:

Please start working again. Not just a little here and there, that just makes it all crazy and even harder on us. (Honeymoon, I don't think so!!)  But just all the time start working. Thank you!! :)

Sunday, October 24, 2010

God Things...

I have been thinking a lot about some of the things that God really had his hand in that we didn't know that the time, but it is neat to look back and see how He really did.

Back in January on a Friday, Emma had a slight cold and we had been trying to leave work all day and it was just a bad day. I was supposed to stop by my Nana's to get her Nebulizer to borrow it for Emma. I was really debating just not going and just going home. I was on the phone with my mom, and if you know her, she (like me) will rarely just be assertive and tell me exactly what to do, but she just said, "yes, go". And I did and we caught my Aunt Mary and Nana in the driveway on their way to Sonic Happy Hour. And weirdly, I got both kids out of the car even though they were kind of having cold symptoms just to wave at Nana and blow her kisses. She died that next morning and I have been so very thankful that we went and got to see her doing one of her favorite things!

Then in August, we were on vacation with my Dad and Bev. We had really been worried about Aiden's frequent urination and excessive drinking, so I was talking to Bev about it as we were walking through Downtown Disney. She was our pediatrician's nurse for 13 years before they moved and before Dr. Lovell was our peditrician. :) Needless to say, she is valuable to our family in so many ways and on-call nurse is one of those. So she said that we'd just use my Dad's meter and test it. So we did and it was 104. Phew! This was 2 weeks before Dx Day and when his A1C was 10.0 so he had it then and it should have been HIGH! We we were on vacation and we were living it up! We had just been to the Cheesecake Factory for goodness sakes! But good grief, I cannot even imagine what we would have done if it was not in that normal range when we were there. We would have flipped out if he would have been admitted to the hospital in LA. So that was another God thing.  Another God thing was that my mom, was once again uncharacteristically assertive and just took a sample of Aiden's urine into her clinic when we got home from vacation. Dr. Lovell said that was such a blessing because we caught it before he was really sick. It could have been so much worse than a BG of 489 and just a trace of ketones. God thing!!

Then this is just a little one, but I guess you could say we have a "Family Bed" Matt and I always said that our kids would NEVER sleep with us and somehow they just did and they still do. But after this summer, I realize it is just another thing I am thankful for. One, because when Emma had her little seizure/sleeping/puking thing when we had to take her to the ER, if she wouldn't have been in the room with us, who knows what would have happened. Also, last week a 13 year old girl died in her sleep from Dead in Bed Syndrome, which occurs with Type 1 Diabetes. It is just devistating to Matt and I and everyone. But it just makes me so very thankful to hear Aiden breathing all night. I appreciate each and every little snore and gritted teeth that tell me he is ALIVE. :)

So... this wasn't the lightest and carefree post, but I wanted to record some of the blessings that I have been thinking of lately.

Saturday, October 23, 2010

Fall Fun!

This we we got to go to the Pumpkin Patch for a field trip. I got to help and Aiden even got to go.
40/29 News was there doing a piece on it. Here is the video of that:
They got to play a lot of games. Mrs. Fulghem's class pretty well dominated! Ha! We were a little excited!

The kids loved this big pile of hay.
And this tunnel of hay.
Mrs. Fulghem's girls.
The corn maze! OMGosh! It was kind of scary. I seriously was scared we wouldn't get out of there!
They got to pick out a pumpkin to take home.

Later that night, we had our neighborhood fall bash. I just love our neighborhood. :)

I love that there are so many boys and girls just right at the same age. They really play well together. :)
Aiden and the girls playing some Barbies in the dark.

Tuesday, October 19, 2010

Random Catch Up

A few weeks ago we got to go to Dallas to the Southwest Classic (i.e. A&M game). It was so fun. We got to see Grandma, Grandpa and Terry, Christy, Jacob and Maggie. These are a little out of order. The ones from my phone are on here first, but should be after the ones from the pep rally. ;) Here is our little tailgate party. YUM! Did I mention that Matt and I parked a mile away, but at an EL CHICO!! Wooo Hooo! And we got $10 off. Hello, chips and salsa, my how we have missed you. ;)

 Awesome stadium!
 We were officially in the nose bleed section, but it was still a God thing because we sat right next to an adult with Type 1 and she is complication free! :) Always nice to hear!
 My favorite #15. :)
 On Sunday, we got to go to this AMAZING place!!
 Emma was in heaven (so was I) and she picked out Emily (Molly's BFF). I was so glad because she was leaning towards one that looked like her, but we found this one that looks pretty darn close and her name is Emily - it was meant to be. :) I really wanted her to get one with a story.
Now... back to the Pep Rally on Friday night. We were so excited to be staying at the same hotel as these guys!
 Tusk IV was a biter! He got Maggie!!
The hotel was so pretty!
Grandpa and Aiden checking out Tusk IV.
This is out of order too... But this weekend we went to church with Ella and Rylan and got to go to the pumpkin patch in front of the church. Quite the posers! ;)
They are all just getting so big! It is going to be fun to look at these pictures 10 years down the road when they probably won't let me take them anymore.

Last week we had school pictures. I can't believe she finally let me get her in a whole outfit of the apple line!! :) Here she's posing with Dot (the little kitty that Nana has been bottle-feeding and we were babysitting)

Our live butterflies really hatched! It was really fun to watch. It only made me gag a little to put the little pieces of paper in the little tents.

This little guy wanted to play in the sprinkler. :)
Here is Aiden's new face he has been making, complete with the Crystal Light mustache. :)
Saturday, we went to the the American Diabetes Association walk and Tour De Cure. It was at Arvest Ballpark. The kids loved the inflatables.

It was really neat and we scored 3 meters! Woo Hooo! Emma even got a pink meter and she has been nagging Aiden like crazy to do his blood sugar.

Later Saturday we went to see Nana at the airport and on the way home we stopped at the Corn Maze. We just did the corn cannon and Aiden hit the target! Yay!!

We are going back next week with JDRF so that will be fun!! Plus we have a field trip this week to another pumpkin patch! :)